About the project
The sibling project is a collaboration between Frambu Resource Centre for Rare Disorders and the Department of Psychology, University of Oslo. See www.sibs.no .
Background
SIBS is an intervention developed for siblings and parents of children with chronic disorders. The SIBS intervention has been developed within the overall «Sibling project» led and initiated by Frambu and is part of a larger effort to prevent mental health problems and other challenges experienced by siblings. The project group works on multiple levels and with multiple international collaborators with research, development, and implementation with siblings, parents, and health providers as target groups.
Objectives
The overall vision of the project is to prevent challenges experienced by siblings of children with chronic disorders through enhancing parent-child communication. See www.sibs.no .
Sub-projects:
The sibling project has multiple sub-projects; which include an ongoing randomized controlled trial, the development of MiniSIBS for preschool siblings, KomSIBS which concerns implementation in Norwegian municipalities, and SIBS-ONLINE which is research and implementation of the online version of the SIBS intervention. See www.sibs.no .
Methods
See details on the SIBS intervention
Funding
- The Research Council of Norway
- Norwegian Women's Public Health Association
- National Advisory Unit on Rare Disorders
- Norwegian Directorate of Health
Collaboration
- Multiple national municipalities and hospitals, including Lillestrøm, Baerum, Asker, Raelingen, Oslo, Nordre Follo, and hospital trusts Lovisenberg, Innlandet, Telemark, Ostfold, and St. Olav's Regional Palliative Teams (PALBU) in South Eastern and Mid-Norway Health Regions.
- Mulitiple international collaborators including Yale University and Baylor University (USA), University of New South Wales (Australia) and the Danish Social Welfare Board (Socialstyrelsen Denmark).
- Frambu Resource Centre for Rare Disorders
Patient involvement
Youth Mental Health, Association for Parents of Children with Disabilities, Autism Association, Association for Children with Heart Disease, CP Association, Ups & Downs (Association for Down syndrome), Adults for Children, Mental health Youth, Mental health, Norwegian Association for Children with Congenital Heart Disease.
Project period
Ongoing since 2012
Results
See www.sibs.no .
