Siri Hagen Kjølaas

Kjoelaas, S., Tillerås, K. H., & Feragen, K. B. (2020). The ripple effect: A qualitative overview of challenges when growing up in families affected by Huntington’s disease. Journal of Huntington's Disease, (Preprint), 1-13.

Tillerås, K. H., Kjoelaas, S. H., Dramstad, E., Feragen, K. B., & von der Lippe, C. (2020). Psychological reactions to predictive genetic testing for Huntington’s disease: A qualitative study. Journal of Genetic Counseling, 1-13

Creed, P. A., Kjoelaas, S., & Hood, M. (2016). Testing a goal-orientation model of antecedents to career calling. Journal of Career Development, 43, 398-412.

• Reime, Monika Alvestad; Grimholt, Tine Kristin; Kjølaas, Siri Hagen; Bringedal, Nina & Hogstad, Ingrid Johnsen (2024). Support in bereavement processes in cases of suicide or substance-related death in childhood: a systematic review. Mortality. ISSN 1357-6275. doi: 10.1080/13576275.2023.2298814. Fulltekst i vitenarkiv Vis sammendrag

  Exposure to parental suicide or substance-related death can be a risk factor for unwanted developmental trajectories. The stigma and taboo that often follow a death subject to being morally sanctioned in society (‘special deaths’) pose an extra challenge for the surviving child and family. The support of informal and formal networks is an important factor in adaptive coping; however, when the death is not socially recognised, the child’s access to support can be limited. This article presents the results of a systematic literature review seeking to explore children’s access to support when parentally bereaved as the result of suicide or a substance-related death. All six studies included address access to support after a suicide-related death. All studies focus on how children can be supported by loss-oriented activities, particularly how to facilitate open communication between the child and their surroundings. Based on this review, the authors recommend developing research on: 1) support for child survivors in the aftermath of substance-related death, 2), children’s everyday grieving practices, including their access to support for restoration-oriented activities, 3) the effects of social support on mental health outcomes, and 4) to developing research designs that allow for disturbing the phenomena of stigma production.

• Kjølaas, Siri Hagen; Jensen, Tine & Feragen, Kristin Judith Billaud (2022). Dilemmas when talking about Huntington's disease: A qualitative study of offspring and caregiver experiences in Norway. Journal of Genetic Counseling. ISSN 1059-7700. s. 1–14. doi: 10.1002/jgc4.1610.
• Kjølaas, Siri Hagen; Feragen, Kristin Judith Billaud & Jensen, Tine (2022). Social support experiences when growing up with a parent with Huntington’s disease. Health Psychology and Behavioral Medicine. ISSN 2164-2850. 10(1), s. 655–675. doi: 10.1080/21642850.2022.2104286.
• Kjølaas, Siri Hagen; Jensen, Tine & Feragen, Kristin Judith Billaud (2021). ‘I knew it wasn’t normal, I just didn’t know what to do about it’: adversity and caregiver support when growing up in a family with Huntington’s disease. Psychology and Health. ISSN 0887-0446. 37(2), s. 211–229. doi: 10.1080/08870446.2021.1907387. Fulltekst i vitenarkiv
• Hansen Tillerås, Kristine; Kjølaas Hagen, Siri; Dramstad, Elisabeth; Feragen, Kristin Judith Billaud & von der Lippe, Charlotte (2020). Psychological reactions to predictive genetic testing for Huntington’s disease: A qualitative study. Journal of Genetic Counseling. ISSN 1059-7700. 29(6), s. 1093–1105. doi: 10.1002/jgc4.1245. Vis sammendrag

  There is a lack of qualitative research investigating the experience of individuals at risk for Huntington's disease (HD) during the period prior to undergoing predictive testing, as well as their reaction to the test result. This secondary analysis study aimed to explore the experiences during the predictive testing process of individuals who had been or who were at risk for HD. For the primary study, in-depth semi-structured interviews were conducted, and data were analyzed using inductive the-matic analysis. We employed the explorative qualitative design for this study, which involved 33 individuals who had been or who were at risk for HD. Results indicate that many had been anticipating the onset of the disease even before they knew their mutation status. Their choice of whether to get tested or not was influenced by personal, social, and practical factors. Whether the test result was positive or negative, coping with the test result was reported to be difficult. Participants with a mutation-negative result felt a need for more follow-up consultations than what they had received. Findings indicate that the decision to undergo predictive testing for HD was not only a personal choice, but was also influenced by both proximal and distant factors. Similar to individuals who tested positive for the mutation, individuals who tested negative for the mutation may need comprehensive follow-up to adapt to the reality of the test result.

• Kjølaas Hagen, Siri; Hansen Tillerås, Kristine & Feragen, Kristin Judith Billaud (2020). The Ripple Effect: A Qualitative Overview of Challenges When Growing up in Families Affected by Huntington's Disease. Journal of Huntington's Disease. ISSN 1879-6397. 9(2), s. 129–141. doi: 10.3233/JHD-190377.

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